Saturday 19 November 2016

All or nothing

There are so many potential side effects for radiation therapy and chemotherapy.

Over the past two months I have seen a handful of specialists at Princess Margaret Cancer Care Centre in Toronto, ON. Each appointment begins with a nurse, then the resident doctor (PMCCC is a teaching hospital), then the oncologist and finally the nurse returns to help put everything together. The nurse and the doctor are always the same on each team (radiation oncology and medical oncology) but the resident often changes.

They are always very patient and clear. They answer all my and Bruce’s questions about the treatment and what to expect and even have some advice on how to manage side effects. I like all of them, mostly; there is one team member who doesn’t seem to be at the same level as the others.

At my most recent appointment they even provided a pile of literature for us to read.

The problem is that not all of the information is unanimous and I get conflicting information.

My chemotherapy medication will be delivered intravenously and I will need to have a Peripherally Inserted Central Catheter (PICC Line) inserted in my arm.

By the way, I am really freaked out by having a half-meter plastic tube shoved up a vein to my heart. I know they do this all the time but it makes me squeamish.

Energy levels aside I wanted to know if I could exercise. Can I perform weight-bearing exercises such as lifting dumbbells at the gym or doing push-ups? What about using the rowing machine? Will the catheter interfere with mobility? Is there the possibility that the catheter will be damaged or slide out? One said I shouldn’t do weight bearing exercise, another said yes, I should maintain my level of fitness and routine as much as I am able too to stay healthy ... if your body can tolerate it?

What about drinking alcohol? "No, but if you do we don’t want to know about it and if you do, don’t drink your favourite wine. The chemo may leave a metallic taste in your mouth and ruin your favourite wine and you will never want to drink it again." While another said, "Yes ... if your body can tolerate it."

It seems that all side effects are potential and not predictable.

Each individual has different reactions to treatment and different tolerance levels.

In fact, one team member (the one I like the least) at my final appointment before treatment begins on Monday said, “You are receiving low dose radiation so you probably won’t have any side effects.” WTF?

I could experience it all or nothing at all … maybe ... maybe not.

I highly doubt it will be nothing.


References

Princess Margaret Cancer Care Centre - Information for Patients and Families


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